Mayo called to get started with the transplant process--or at least it was the transplant program who needed us to call back, either way it is progress. While we are very early on with the process, it is a small step in the right direction. A step towards not having to be picked with big needles on the same arm over and over again, giving up15 hours each week sitting in an uncomfy chair being seranaded by the beeps of the machine that is keeping Mark alive. It will still be a very long journey, but one that we are so blessed to be able to begin.
On another note, I am always searching the internet for information about dailysis, FSGS, and transplants. I came across a site that was created by patients of dialysis and came across a message that spoke so much truth. It is comforting to know that others are out there who know what we are going through.
You know you love a kidney patient when....
--You stare at their ankles discretely to see if they are underdialyzed
--You worry about their fistula when they cut their hand
--You jump out of bed just to make sure they make it to dialysis on time
--You pretend not to notice when they just have to have fries and a shake
--You secretly wonder if they have taken their meds.
--You can tell when they are faking not feeling well to get out of something, and you know when they are faking feeling well in order to do something - and you let them get away with both anyway.
--You secretly study everything you can about their disease, but you act dumb when they explain something to you.
--You lay awake at night terrified about how alone you will feel if something happened to them, and you cry.
--You fall asleep to the sound of his fistula humming.
I am so very thankful for modern medical technology and dialysis. I am thankful my husband is so strong and and so glad I can be there for him through all of this.
So happy to hear this Kate! And I love that picture of you and Mark. You were gorgeous that day(and every other day)
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