Nephcure Walk

Today I participated in the 1st Nephcure Walk in Phoenix! I am so glad I participated (and thank all those who donated to the cause)!

The people I met today were amazing and inspirational. There were 3 young children who were running around playing, who also had FSGS. They have endured a lot of hospital stays and currently take predisone (which is a type of steriod) to keep the disease dormant. I truely hope this works and they can continue to enjoy their childhoon the way they should. I also met another woman (in the picture below), who had a husband who suffered from FSGS. Her and I bonded at once...it kind of crazy that it happened. Her and I both new what each other has gone through and we instantly felt that connection.

 I was also able to meet Lynn and her husband. Lynn has worked in the non-profit for most of her lifetime and her husband of 7 years has become involved with Nephcure since then. They were so welcoming and were filled with positive energy. Her husband spoke with me for some time and I know that he is doing him part to fight for finding what causes FSGS and its cure.

At the end of the walk, everyone was so excited to start for the 2nd annual Nephcure Walk in Phoenix for next year. I know I would like to become more involved with the process and cannot wait for Mark to join in the walk next year. I think Mark and I have felt like we have been alone and do not have someone to talk to that have gone through what we have gone through. (Mark and I love our family for all the support they have given us, but knowing people who have been through the same thing as us is a bond and connection that is comforting).

A start to find the cause and cure for FSGS!